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Information about Autism Spectrum Disorder – The Autism Exchange

Introduction

Autism spectrum disorder is a complex developmental disability that typically appears during the first three years of life and affects a person's ability to communicate and interact with others.  Autism is defined by a certain set of behaviors and is a "spectrum disorder" that affects individuals differently and to varying degrees.  There is no known single cause of autism, but increased awareness and funding can help families today.

Some of the behaviors associated with autism include delayed learning of language; difficulty making eye contact or holding a conversation; difficulty with executive functioning, which relates to reasoning and planning; narrow, intense interests; poor motor skills and sensory sensitivities.  Again, a person on the spectrum might follow many of these behaviors or just a few, or many others besides.  The diagnosis of autism spectrum disorder is applied based on analysis of all behaviors and their severity.

In March 2014, the Centers for Disease Control and Prevention issued their ADDM autism prevalence report.  The report concluded that the prevalence of autism had risen to 1 in every 68 births in the United States – nearly twice as great as the 2004 rate of 1 in 125 – and almost 1 in 54 boys.  The spotlight shining on autism as a result has opened opportunities for the nation to consider how to serve families facing a lifetime of supports for their children.

In June 2014, researchers estimated the lifetime cost of caring for a child with autism is as great as $2.4 million.  The Autism Society estimates that the United States is facing almost $90 billion annually in costs for autism.  (This figure includes research, insurance costs and non-covered expenses, Medicaid waivers for autism, educational spending, housing, transportation, employment, related therapeutic services and caregiver costs.)

Know the signs:  Early identification can change lives

Autism is treatable.  Children do not "outgrow" autism, but studies show that early diagnosis and intervention lead to significantly improved outcomes.  For more information on developmental milestones, visit the CDC's "Know the Signs. Act Early" site.

Here are some signs to look for in the children in your life:

  • Lack of or delay in spoken language
  • Repetitive use of language and/or motor mannerisms (e.g., hand-flapping, twirling objects)
  • Little or no eye contact
  • Lack of interest in peer relationships
  • Lack of spontaneous or make-believe play
  • Persistent fixation on parts of objects

Related Sites

The Autism Research Institute
Description:  The Autism Research Institute's mission is to meet the needs of the global autism community through research, networking, education, and support for families and people of all ages on the autism spectrum.

Parents’ Stories – From Autism Diagnosis to Treatments, Hope and Recovery
Description:  Treating Autism aims to provide support and information to persons affected by ASD, their family members and professionals.

Books

All I Can Handle: I'm No Mother Teresa: A Life Raising Three Daughters with Autism
Description:  This book is about the author, Kim Stagliano’s, memoir of her family’s voyage raising three daughters with autism.

The Autism Revolution: Whole-Body Strategies for Making Life All It Can Be by Martha Herbert, MD
Description:  The Autism Revolution: whole-Body Strategies is a phenomenal piece of work for parents of children with autism by highly acclaimed researcher Dr. Martha Herbert from Harvard Medical School. She outlines her strategies to restore health and wellness by her specific recommendations.

Tools

The Autism Doctor
Description:  Dr. Brian Udell, MD, focuses his training and practice on problems with childhood development. One of the more common out-of-range laboratory findings in the children who come to his clinic is a low vitamin D level.

The Autism Eye Magazine
Description:  The Autism Eye Magazine is an in depth source of autism information and advice. Learn about alternatives to drugs, family experiences, jobs and employment, new approaches to treating problems, Lyme disease, Self help skills and much more.

Parent Forums/Blogs

Some forums require you to sign in to Yahoo or Facebook to locate forum names.

Forum/Blog Name:  Recovering Kids.com
Description:  At our group, you'll find parents ready to offer their experiences when faced with similar situations. Sharing and healing together. Whether your child has autism, allergies, ADHD, apraxia, sensory processing disorder, pandas or mitochondrial disease, there is biomedical information in the group for you.

Forum/Blog Name:  Center for Autism And Related Disorders (CARD)
Description:  CARD's mission is to help individuals with autism spectrum disorder (ASD) around the globe reach their maximum potential. Using evidenced-based principles of applied behavior analysis (ABA), CARD creates individualized treatment plans with goals tailored to each individual’s specific needs.

Consumer Corner

The AEX Directory
Description:  We do not provide medical advice on this site. Please consult your practitioner to discuss treatments for medical conditions. We do have a Directory feature that includes Practitioner Lists as well as Supplement Suppliers, Lab Test Companies, Compounding Pharmacies, and Prescription Drug Lookup. This feature can be accessed by clicking the link above or clicking The AEX Directory icon from our home page or any of the Navigation bar pages.

Community Library

Autism Therapies
Description:  In this article, the Community Pharmacy offers some background on Autism as well as a wide range of therapies.

National Institute of Neurological Disorders and Stroke: Autism Fact Sheet
Description:  Some of the most frequently asked questions concerning autism.




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