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Lyme Disease & Children with Autism

Introduction

Lyme disease is a bacterial infection transmitted by a tick.  Lyme disease was first recognized in 1975, after researchers investigated why unusually large numbers of children were being diagnosed with juvenile rheumatoid arthritis in Lyme, Connecticut, and two neighboring towns.  The investigators discovered that most of the affected children lived near wooded areas likely to harbor ticks.  They also found that the children's first symptoms typically started in the summer months coinciding with the height of the tick season.  Several of the patients reported having a peculiar skin rash just before developing arthritis symptoms, and many also recalled being bitten by a tick at the rash site.  Further investigations resulted in the discovery that tiny deer ticks infected with a spiral-shaped bacterium or spirochete (which was later named Borrelia burgdorferi) were responsible for the outbreak of arthritis in Lyme. Ordinary "wood ticks" and "dog ticks" do not carry the infection.

The ticks most commonly infected with B. burgdorferi usually feed and mate on deer during part of their life cycle.  The recent growth of the deer population in the northeast and the building of suburban developments in rural areas where deer ticks are commonly found have probably contributed to the increasing number of people with the disease.  The number of reported cases of Lyme disease, as well as the number of geographic areas in which it is found, has been increasing.  Lyme disease has been reported in nearly all states in this country, although most cases are concentrated in the coastal northeast, Mid-Atlantic States, Wisconsin, and Minnesota, and northern California.  Lyme disease is also found in large areas of Asia and Europe.  Recent reports suggest that it is present in South America, too.

In the early stages of Lyme disease, you may experience flu-like symptoms that can include a stiff neck, chills, fever, swollen lymph nodes, headaches, fatigue, muscle aches, and joint pain.  You also may experience a large, expanding skin rash around the area of the tick bite.  In more advanced disease, nerve problems and arthritis, especially in the knees, may occur.  Lyme disease imitates a variety of illnesses and its severity can vary from person to person.  If you have been bitten by a tick and live in an area known to have Lyme disease, see your doctor right away so that a proper diagnosis can be made and treatment started.

Related Sites

Lyme Disease Association, Inc. (LDA)
Description:  The Lyme Disease Association, Inc. (LDA) mission is promoting awareness of and controlling the spread of Lyme and other tick-borne diseases (TBD) and their complications through education and other means; raising and distributing funds for Lyme and tick-borne diseases (TBD) research, education and other related Lyme and TBD issues; assisting underprivileged patients in connection with Lyme and other TBD.

International Lyme and Associated Diseases Society (ILADS)
Description:  The International Lyme and Associated Diseases Society (ILADS) promotes understanding of Lyme and its associated diseases and strongly supports physicians and other health care professionals dedicated to advancing the standard of care for Lyme and its associated diseases.

Lyme Induced Autism (LIA) Foundation
Description:  The Lyme Induced Autism (LIA) Foundation’s goal is to provide education, awareness and research into an infectious based cause of autism. Lyme/borrelia is their PRIME suspect, but they indicate that there are multiple infections happening on a disabled immune system and these infections can be triggered by many factors.

Klinghardt Academy
Description:  Biological treatment of Lyme disease.

Lyme Disease Network
Description:  This organization is responsible for the LymeNet series of services available on the Internet since 1994, including an online library and other resources.

Books

Healing Lyme Disease Coinfections: Complementary and Holistic Treatments for Bartonella and Mycoplasma by Stephen Harrod Buhner
Description:  This book is a comprehensive guide with a treatment protocol for the most damaging coinfections of Lyme – Bartonella and Mycoplasma. The author gives very specific treatment protocols focusing on the use of herbs and supplements to heal the body and eradicate these two bacteria.

Insights Into Lyme Disease Treatment: 13 Lyme-Literate Health Care Practitioners Share Their Healing Strategies by Connie Strasheim
Description:  This book is packed with extremely relevant information from 13 interviews with Lyme disease healthcare practitioners. The readers will find information on the right remedies, a variety of alternative healing practices, dietary interventions, lifestyle changes, immune therapies, detox protocols and much more.

Beyond Lyme Disease: Healing the Underlying Causes of Chronic Illness in People with Borreliosis and Co-Infections by Connie Strasheim and Lee Cowden MD
Description:  If you have already read healthcare journalist Connie Strasheim’s previous book on Insights into Lyme Disease Treatment, then this new book with Lee Cowden is even more informative. If you have tried everything, this is a book with some answers.

What You May Not Know About Bartonella, Babesia, Lyme Disease and Other Tick & Flea-Borne Infections: Improving Treatment Speed, Recovery & Patient Satisfaction by James Schaller MD and Kimberly Mountjoy MS
Description:  What You May Not Know about Bartonella, Babesia, Lyme Disease and Other Tick and Flea-Borne Infections is one of 13 books on this subject matter by the author. Dr. Schaller is a self-funded researcher in the field. If you are stuck in your healing process, Dr. Schaller is the doctor to see and read his book to understand your condition and how to move forward.

The Beginner's Guide to Lyme Disease: Diagnosis and Treatment Made Simple by Nicola McFadzean N.D. and Joseph J. Burrascano Jr. M.D.
Description:  The Beginner’s Guide to Lyme Disease: Diagnosis and Treatment made Simple is the perfect comprehensive guide to help treat and manage Lyme disease for the newly diagnosed. Dr. McFadzean’s approach incorporates both alternative and traditional western medicine practices for treatment of Lyme with numerous resources and functional tools for those getting started.

The Lyme-Autism Connection: Unveiling the Shocking Link Between Lyme Disease and Childhood Developmental Disorders by Tami Duncan (Author), Bryan Rosner (Author), Robert Bransfield (Foreword)
Description:  The Lyme-Autism Connection reveals the shocking connection between Lyme disease which is triggered by contacting a tick and Autism, a childhood disorder. The two seem relatively unrelated, but the authors look for the underlying connections and similarities between the two.

Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub
Description:  Cure Unknown: Inside the Lyme Epidemic is a personal account of the author’s family journey with Lyme. Pamela Weintraub, a science journalist, gives an in depth look at all aspects of the disease and her family’s struggle in their attempt to gain answers and why the medical field has been in denial.

Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease by Richard Horowitz
Description:  This book is an account of the author’s personal experience in his own practice of over 12,000 patients and the protocols he implements for the most positive outcomes. His two areas of expertise – a 16 point Differential Diagnostic Map and MSIDS – Multiple Systemic Infectious Disease Syndrome offer a unique treatment plan for his patients.

The Top 10 Lyme Disease Treatments: Defeat Lyme Disease with the Best of Conventional and Alternative Medicine by Bryan Rosner, Julie Byers and Michael Huckleberry
Description:  This book shares all of the latest highly acclaimed conventional and alternative medicine protocols that have shown to be effective for Lyme Disease. Read about the effective tools and resources which have worked for so many people.

The Lyme Diet: Nutritional Strategies for Healing from Lyme Disease by Nicola McFadzean ND
Description:  Dr. Nicola McFadzean, who has been working since 1997 with Lyme patients, shares his wisdom and wealth of information on dietary suggestions. Dr. McFadzean feels dietary interventions are a necessary tool in addressing many of the chronic illnesses which are a result of having Lyme disease. Reducing inflammation, improving the immune system, emphasizing a healthy GI tract and good gut flora are all part of the healing process for Lyme disease.

Healing Chronic Lyme Disease Naturally: 2nd Edition by Joey Lott
Description:  Healing Chronic Lyme Disease Naturally is a layman’s approach to healing Lyme in a natural and most affordable way. The author has a variety of suggestions using common herbs to help with many of the symptoms of Lyme. He also promotes his two healing techniques to improve one’s metabolism and unload the body’s burden of stress.

The Lyme Disease Solution by Kenneth B. Singleton M.D.
Description:  The Lyme Solution is written by Dr. Kenneth Singleton, an internal medicine doctor who struggled for eight years with Lyme symptoms before finally being diagnosed correctly. His book offers many insightful and useful tips for his patients and their families.

Tools

Recipes for Repair: A Lyme Disease Cookbook by Kenneth B. Singleton MD, Laura Piazza, Gail Piazza
Description:  This cookbook is a compliment to Dr. Ken Singleton’s book The Lyme Disease Solution. Dr. Singleton teamed up with Gail and Laura Piazza to create this amazing cookbook based on the dietary principles of the Lyme Inflammation Diet.

Lyme Induced Autism – One Family’s Incredible Story
Description:  Video showing one family’s incredible story of Lyme induced Autism.

Living With Lyme Disease
Description:  Web site that that lists hints, tips and resources to make your journey to getting well just that little bit easier.

The Treat Lyme Book
Description:  A do it yourself guide to treating Lyme disease.

Parent Forums/Blogs

Some forums require you to sign in to Yahoo or Facebook to locate forum names.

Forum/Blog Name:  ACN Latitudes PANS and Lyme Support Group
Description:  Association for Comprehensive Neurotherapy (ACN) latitudes parent forum. This forum has combined discussions for Lyme and PANDAS into one group.

Forum/Blog Name:  Lyme Disease Awareness: Public Group
Description:  This Facebook group provides support and networking opportunities for those with Lyme disease and their loved ones.

Forum/Blog Name:  Lyme Net Support Group
Description:  A listing of Lyme Disease support groups by region, nationally and internationally.

Forum/Blog Name:  Children’s Lyme Disease Network
Description:  The Children’s Lyme Disease Network’s mission is to promote awareness and provide educational outreach to parents, caregivers, health care providers, and organizations that interact regularly with children, particularly those in the age group most at-risk of becoming infected.